When there is a rock in our path, we can stumble over it or use it as a stepping stone.

Friday, September 23, 2011

Limited mental energy

From  "How much is too much: focusing on relevant components while spreading dementia awareness" :

"For me, everything’s in queue for my time and energy– things I want to learn and do, things I need to learn and do–and often it is just a toss-up: should I read that article? See that movie? Catch up with friend ABC? Or take a walk or eat ice cream instead?  I guess it’s the same for others, given how most people seem squeezed for time, just about managing to carry on."

The funny thing is as a primarily homebound dementia patient, I should seemingly have loads of time to do things, yet I feel the same way as the author in the previous paragraph about the limitations.  Although my limitations are not because of the amount of time I have available to do things but because of the amount of time my brain can handle doing them before it gets tired and I start to lose focus.

Even more so now while any response I make to what I read has to be done one handed until my right wrist heals.   Am finding that is draining me even more, causing me to put off things like keeping current on most of the blogs I usually read, etc.

Monday, September 19, 2011

Pat Robertson says divorcing spouse with dementia is fine

Rev. Katie at "Moving in with Dementia" has written an excellent response to Pat Robertson says divorcing spouse with dementia is fine because it is a kind of death (thus not really breaking the "to death do us part" marriage vow.

As I said in my comment on her post:

Thank you for this post. I saw his article too and was as appalled by it as you are. I had wanted to blog about it too but am not up to doing much blogging yet while my fractured wrist is still healing.

Since you did such a terrific post on it, I am just going to do a fast mini post to point folks to this blog post instead.

Monday, September 12, 2011

Dementia and spirituality

I'm not posting much right now while I wait for yet another wrist fracture to heal (is just one of my usual spontaneous micro fractures that I get because of my osteogenesis imperfecta) but I did want to do one fast post to point out Bruce's current post, God is Within,  at Living with Dementia for anyone who might not have seen it.

As I said in my comment on his post, I think that is a very important post for anyone who is working with someone with dementia to see.    Bruce stated things so well in his post that the only thing I will add is that as I deal with a variety of physical issues including, but not limited to, my dementia, I continually remind myself that it is not me who has these things but my body and I am not my body.   I am an eternal soul simply using this body as a dwelling place for this lifetime on earth.    As long as I am able to keep my eye on the larger picture then I can use the things my body is going through as a vehicle for continued spiritual growth.  The lessons I can learn from what this body is experiencing will remain with me long after I have left this body behind.

Friday, September 2, 2011

Memory and Identity

On Monday, August 29th, Cellar Guy wrote a post titled "Forgotten Bread."   I was rather foggy when I read it but I got enough out of it to know there was the seed of a post for my blog in it, so I made a note to go back and reread it on a day when my head was a bit clearer.

Cellar Guy's post talks about how what happens to us makes us who we are and how what we end up remembering of past events shows us what is most important.    I wondered how that pertains to those of us with dementia though who get to the point like me where we cannot remember our own address and phone number or like  Rev. Katie's mother in Moving in With Dementia where we lose our ability to sign our name or eventually (as happens to everyone in later stages of dementia) we no longer recognize our loved ones.

My initial reaction today when rereading Cellar Guy's post was how does losing everything from our phone number and address to ability to sign our name to knowing  who our loved ones are show us what is most important now and then I remembered reading something Ram Dass wrote when talking about people living with dementia - that we really need very little of our past to do what matters most "Be Here Now."    I can see the truth and the beauty in that.

Thank you, Cellar Guy, for helping jog a memory that put things in perspective for me.